We have the same birthday, she and I. We were born worlds
apart, both geographically and culturally, but on the same day of the same
month in the same year. I noticed her birth date, right there on the front page
of her daughter’s, my patient’s, medical chart. Her daughter, who should have
been a princess. In a family full of men and boys, sons and nephews, the baby
was the first girl to be born in over 40 years. The family prepared for her
birth, overjoyed, buying frilly dresses and pink bedspreads and dolls. But it
was not to be. Mother was stricken with intrapartum hemorrhage and baby was
born with anoxic brain injury, doomed to be neurologically devastated.
And that’s not even the worst part.
She tells me that she and her husband sometimes imagine what
it would be like if her daughter, now turning one, were born healthy. They can
almost hear her say “mama” and “dada”, can almost feel her hugs as she runs, laughing,
into their arms. They wonder if she would be crawling now, walking now, what
food she would like best, and if her older brother would share his toys with
her. They mourn what could have been, what should have been.
That’s not the worst part either.
In their home country, they were told to leave her to die.
They were told not to pursue medical care, that God would take care of “the
situation.” And that’s when they packed their bags. They ravaged through bureaucratic
red tape and procured visas. They left it all, their supportive family, their grand
estate, and moved to a small apartment in the United States so they could get medical
care for their daughter in the first world. In their home country, they were
royalty. And here they work menial jobs to make ends meet. She works at a local
supermarket, bagging groceries. One day, she tells me, a customer was checking
out groceries with her own daughter, who was particularly rambunctious. The
customer was frazzled, stressed, in a rush, and frustrated with her daughter.
The customer turned to the woman, this grocery bagger, this almost-but-not-quite-bereaved
immigrant mother and said to her, “She’s driving my crazy. Do you want her?
Just take her.”
And that was the worst part.
Does she want her? Well, not her exactly, but yes, of course
she craves a normal, healthy daughter. What a horrible thing to hear. What a
horrible thing to say. It’s not even that the customer was trying to be mean;
it’s not human cruelty. It’s the cruelty of the universe, the cosmic unfairness
of it all, coupled with human indifference and sarcasm, that combine together
to create a vortex of heartbreaking tragedy.
I take care of children like this every day. Children with
chronic illness, children with neurologic devastation due to the unfortunate
hand that was dealt to them: prematurity, trauma, genetic disease. In order to
survive as doctors, there must be an emotional barrier. We can be empathetic,
but we cannot get too close emotionally, otherwise we cannot function. But this
one hit me hard. Maybe it’s the fact that we have the same birthday. Or maybe
it’s because I, too, suffered intrapartum hemorrhage, but because it was
expected and planned for, the baby and I did incredibly well. Or maybe it has
to do with the fact that I am freshly back from maternity leave after
recovering from said complicated delivery and I am physically and emotionally
exhausted. This one broke through the emotional barrier and catapulted me from
the land of empathy to the state of feeling.
I want to say to her: I feel you. I feel your pain and your
heartbreak and you are not alone. Let me bear some of it for you so you can
take a breath. Right now, as the discharge papers are being printed and you are
collecting your things, let me shoulder some of this pain for you. I don’t say
it. Maybe I should but I don’t. I squeeze her hand and wish her well and tell
her that her daughter is lucky to have her. I thank her for the opportunity to
take care of her daughter, and I say goodbye.